TOWARDS AN ETHICS OF AUTISM

This is a book about the meanings, experiences and dynamics of autism.
My initial interest in autism began ten years ago. As a bioethicist
who had written a PhD on pediatric biobanks, I was interested in the
ethics of genetic research and genetic diagnostics of autism. These
practices raise several questions in traditional biomedical ethics, such
as what genetic findings should genetic counsellors convey to their
clients, and are genetic ‘risk' factors1
for autism a good reason to opt
for reproductive techniques such as in vitro embryo testing? Moreover,
back in those days, and still today, public discourse on autism often
centred around whether or not there are too many diagnoses of autism.
Children with an autism diagnosis, previously scarce, were now to be
found in every classroom.
[Cambridge: 2021]

Compartir: